Day 14 and I am still sharing!
Today is one of OPSACC’s cuties:
Up until about May 2009 this little guy was riding his trike in the living room and doing stunts for us. Then something changed. It seemed like at first he just had a bad flu, some vomiting and fatigue. But the symptoms just didn’t go away. Then he lost interest in all the normal little things he use to do. He rarely got on his trike or played with his other toys.
He was still vomiting and then started losing some of his balance and walking as if he was drunk and tilting his head to the left shoulder. We kept taking him back and forth to the Dr over the next several weeks trying to identify what was wrong. Had blood work run but they didn’t see anything in particular.
Monday June 8th 2009 at 3:00 PM we took him to the Dr again and this time when we mentioned the symptoms, the Dr decided to take a look at his pupils. That’s when he noticed the left one was bigger than the right and that meant something was possibly wrong with his brain and putting pressure on his optic nerve. The Dr made calls right away and arranged for an immediate CT scan at the hospital next door.
They must have seen something right away because they called the Dr before they told us they were done and then said we were to go back to the Dr’s office right away for the results. We were hoping this was just because we were so close and they didn’t want to bother with a call later since it was closing time.
When the Dr came into the room he said he didn’t have good news for Jaryn. He said he had a tumor on his brain that was about 3 centimeters wide (size of a golfball) and he didn’t know if it could be operated on because it was deep inside and at the base of his brain stem. He had already called Phoenix Children’s Hospital and said they were waiting for us to go straight there and have him admitted. They acted quickly and had already scheduled surgery for the next day.
Praise God the surgeon (David Moss) was amazing and confident he could get the entire tumor which appeared to be malignant. After FOUR LONG hours in surgery on Tuesday June 9,2009 With our entire family in the surgery waiting area the surgeon came out and notified all of us that he believes he got it all.
Jaryn is still working hard to recover from this very serious surgery as well as the effects of Radiation which can last for years after and we need your prayers.
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CURE’s Mission Statement:
CURE Childhood Cancer is dedicated to conquering childhood cancer through funding targeted research and through support of patients and their families.
CURE Childhood Cancer believes that childhood cancer can be cured in our lifetime.